Skip to main navigationSkip to main content

What you need to know

We want to understand if and how a person’s experience of mental health issues impacts the way they are treated by others in different areas of their lives. These “life domains” include:

  • housing
  • employment
  • education
  • healthcare
  • mental healthcare
  • finance and insurance
  • public spaces and recreation
  • mass media
  • social media
  • relationships
  • welfare and social services
  • community groups
  • justice and legal services
  • cultural, faith, or spiritual practices and communities.

Who we are looking for

To be eligible to take part in Our Turn to Speak, you must be an Australian resident, aged 18 and over, who has been living with at least one of the following severe and complex mental health issues over the last 12 months:

  • Schizophrenia spectrum disorders (such as schizophrenia, schizoaffective disorder or schizophreniform disorder),
  • Bipolar and related disorders,
  • Personality disorders (such as, but not limited to, borderline personality disorder),
  • Obsessive-compulsive and related disorders (such as OCD, body-dysmorphic disorder, excoriation disorder, trichotillomania or hoarding disorder),
  • Post-traumatic stress disorder,
  • Dissociative disorders,
  • Eating disorders (such as anorexia nervosa, bulimia nervosa, avoidant/restrictive food intake disorder, and binge-eating disorder),
  • Severe and treatment-resistant depression and anxiety requiring multi-agency support.

We are seeking responses from people who have received a formal diagnosis, as well as those who have not been diagnosed formally, but believe they may be experiencing one of these mental health issues.

You don’t need to be experiencing active symptoms to be impacted by your complex mental health issues in the community. We want to know if and how people treat you differently, even if you don’t need to manage active negative symptoms on a regular basis.

This confidential survey is open to any adult aged 18 and over residing in Australia who has been living with severe and complex mental health issues over the last 12 months.

Information for participants
How to get involved

If you are living with complex mental health issues, you can complete the survey online now or make a time to complete the survey via a phone interview, between 9am–8pm (AEDT), Monday–Friday. Click here to make a booking.

If you know someone who might be eligible to take part, share the survey here.

Do you work with people affected by complex mental health issues, or do you support people in one of the other life domains listed above?

Find out how you can contribute to Our Turn to Speak by becoming a project supporter.

Complete the survey online

Completing the survey online will take approximately 30 minutes.

Complete the survey via phone interview

You can book a time for one of our researchers to take you through the survey over the phone.

Become a project supporter

Does your organisation represent or regularly meet people who may be eligible to participate in the survey? We’d love to have you onboard! Become a project supporter and help spread the word about this initiative.

More than 690,000 Australian residents over the age of 18 live with complex mental health issues. Our Turn to Speak will explore if and how mental health issues impact the many and varied aspects of participants’ lives. The data collected will then be used to inform SANE’s future advocacy efforts as we work towards improved social outcomes and support for all Australians affected by these issues.

Whether someone’s life experiences have been positive or negative, the information they provide will help us better understand where change is needed.

SANE’s ultimate goal is to make a real difference in the lives of people affected by complex mental health issues through support, research and advocacy.

Learn more about Our Turn to Speak

News


The latest news from SANE Australia.

Need mental health support?

If you need support, visit our support page to find available services.

For urgent assistance call Lifeline on 13 11 14, or 000 if there is an emergency.

Get support
sane.org home
Anne Deveson Research Centre home
Melbourne School of Psychological Sciences home

© 2019 SANE Australia. All rights reserved.

SANE Australia acknowledges the Aboriginal and Torres Strait Islander peoples as traditional custodians of the land on which it operates, and pays respect to Elders past, present and emerging. SANE is committed to providing a safe, culturally appropriate, inclusive service for all people, regardless of their ethnicity, faith, disability, sexuality, or gender identity.

Need support?

The SANE Help Centre provides the information, guidance, and referrals you need cdkfto manage mental health concerns.


Crisis Support


SANE Helpline

Talk to a mental health professional (weekdays 10am-10pm AEST). For urgent assistance call Lifeline on 13 11 14, or see Crisis Support on this page.


Helpline Email

Get in touch via this form or email helpline@sane.org


SANE Forums

Join the discussion on the SANE Online Forums for information and support. Anonymous and moderated 24/7.

For people living with mental illness

For family friends and carers


Mental health information and advice

For extra resources such as factsheets, guides and crisis support, visit the SANE Australia website.