What you need to know
We want to understand if and how a person’s experience of mental health issues impacts the way they are treated by others in different areas of their lives. These “life domains” include:
- mental healthcare
- finance and insurance
- public spaces and recreation
- mass media
- social media
- welfare and social services
- community groups
- justice and legal services
- cultural, faith, or spiritual practices and communities.
Who we are looking for
To be eligible to take part in Our Turn to Speak, you must be an Australian resident, aged 18 and over, who has been living with at least one of the following severe and complex mental health issues over the last 12 months:
- Schizophrenia spectrum disorders (such as schizophrenia, schizoaffective disorder or schizophreniform disorder),
- Bipolar and related disorders,
- Personality disorders (such as, but not limited to, borderline personality disorder),
- Obsessive-compulsive and related disorders (such as OCD, body-dysmorphic disorder, excoriation disorder, trichotillomania or hoarding disorder),
- Post-traumatic stress disorder,
- Dissociative disorders,
- Eating disorders (such as anorexia nervosa, bulimia nervosa, avoidant/restrictive food intake disorder, and binge-eating disorder),
- Severe and treatment-resistant depression and anxiety requiring multi-agency support.
We are seeking responses from people who have received a formal diagnosis, as well as those who have not been diagnosed formally, but believe they may be experiencing one of these mental health issues.
You don’t need to be experiencing active symptoms to be impacted by your complex mental health issues in the community. We want to know if and how people treat you differently, even if you don’t need to manage active negative symptoms on a regular basis.
This confidential survey is open to any adult aged 18 and over residing in Australia who has been living with severe and complex mental health issues over the last 12 months.Information for participants
If you are living with complex mental health issues, you can complete the survey online now or make a time to complete the survey via a phone interview, between 9am–8pm (AEDT), Monday–Friday. Click here to make a booking.
If you know someone who might be eligible to take part, share the survey here.
Do you work with people affected by complex mental health issues, or do you support people in one of the other life domains listed above?
Find out how you can contribute to Our Turn to Speak by becoming a project supporter.
You can book a time for one of our researchers to take you through the survey over the phone.
More than 690,000 Australian residents over the age of 18 live with complex mental health issues. Our Turn to Speak will explore if and how mental health issues impact the many and varied aspects of participants’ lives. The data collected will then be used to inform SANE’s future advocacy efforts as we work towards improved social outcomes and support for all Australians affected by these issues.
Whether someone’s life experiences have been positive or negative, the information they provide will help us better understand where change is needed.
SANE’s ultimate goal is to make a real difference in the lives of people affected by complex mental health issues through support, research and advocacy.Learn more about Our Turn to Speak
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